How is Wolf-Hirschhorn Syndrome treated?
Wolf-Hirschhorn Syndrome is a rare genetic disorder that affects the development of the kidneys and other organs. Treatment typically includes surgery to correct problems with organs and medications to help control symptoms.
What to do if you suspect your child has Wolf-Hirschhorn Syndrome
Wolf-Hirschhorn Syndrome (WHS) is a rare genetic disorder that can affect any part of the body. There is no known cause, and there is no cure. WHS affects both children and adults and can range in severity from very mild to life-threatening. If you suspect your child has WHS, here are some things to do:
1. Talk to your child about WHS. Explain that they have a condition that affects their body, but that it doesn’t mean they’re bad or defective. Let them know you want them to feel comfortable talking about anything that concerns them.
2. Visit a healthcare provider. If you think your child has WHS, it’s important to get a diagnosis from a healthcare professional as soon as possible. A healthcare professional will be able to provide you with more information about WHS and help you decide if your child needs any specialized care or treatments.
3. Get involved in your child’s care. You may be interested in participating in various caretaking such as bathing, dressing, or feeding your child.


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