Apert Syndrome in children?
Apert syndrome is a rare genetic disorder that affects the development of the skull and brain. Symptoms can vary from child to child, but typically include facial features that are too big for their head, heart defects, and difficulties with movement and coordination.
If you’re caring for a child who has Apert syndrome, there are a few things you need to know:
Early diagnosis is key without an early diagnosis, children with Apert Syndrome may not receive the care and treatment they need to reach their full potential.
There is no “cure”  while treatments will help improve the overall quality of life for children with Apert syndrome, there is no cure yet available.
Support groups are important – joining a support group can provide families with a place to discuss common issues and connect with others who have experienced similar challenges.

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